~This essay was previously published in
The Gettysburg Review (2012).
“We
call contrary to nature what happens contrary to custom; nothing is anything
but according to nature, whatever it may be.”
Michel
de Montaigne Of a Monstrous Child
“Look
at that face! Okay you kids – get close to Sam – give him a tickle – let’s get
him to smile – here we go.”
Click.
The
earliest memory I have of my brother, Sam, is this photograph taken by my
father with a Kodak box camera in 1950. Sam sits scowling in a red Radio
Flyer wagon pulled by our older brother, Bobby, over the bumpy flagstone
walkway in front of our childhood home behind the nursing home in Old Mystic,
Connecticut. I am standing next to the wagon, my blond pig-tails sticking out
like a four year old Pippi Longstocking, with a child-sized garden rake in one
hand and the other on Sam’s tiny shoulder, steadying him on his perch. This
pose with me as the big sister trying to keep a grip on Sam foretold our
future. His expression, with his chubby lower lip pulled up to his nose and
eyebrows scrunched together under a wide-brimmed girlie sun hat, was also
prophetic. There were arrows coming from his eyes towards the camera. He was
eight-months old in that snapshot, but I would see that same expression many
times over the thirty-nine years of his life.
From
his earliest days he could aim that scowl at anyone and the word went out:
“Sam’s not happy.” He sent mood telegraphs with his facial expressions. As soon
as he could stand up on his little mutton chop legs, he further illustrated his
discontent by taking off in all directions as fast as those mini gams could
carry him. Drooping cloth diapers never slowed him down. Sam could turn ornery
at a moment’s notice and demonstrate demon behavior – something that I aspired
to as a child but assumed I could never get away with.
Our
parents battled for control over Sam’s moods and meanderings. Many a
family outing ended with my mother’s frantic cry: “Where’s Sam?” and the alarm
went up: “Sam’s taken off again!” We would all go to our lookout points. Even
at a picnic table in a park in an open clearing with ten pairs of eyes looking
left and right, he could vaporize.
He
would never have his picture taken with Santa Claus at the G. Fox & Co.
department store, in Hartford, Connecticut, a yearly tradition for the rest of
us. He was already on the lam as soon as we entered the store. Each year,
as my older brother and I waited like automatons to sit on Santa’s lap,
standing on fake snow in the line of children that snaked through Frosty
Village and the elves’ toyshop, Sam had already departed for the luggage
department or housewares or men’s clothing with our parents in pursuit, my
father panting in his wool suit, overcoat and felt hat, my mother slipping and
sliding in her high heels and taffeta dress with her coat over her arm – both
wearing a look of alarm. Sam could do that to adults. They never knew what he was going to do even though
he seemed to do the same thing, over and over.
“What
ails that child?” said my grandmother, “he just goes off on a toot whenever he
wants. He takes after Grandfather Sam. He couldn’t stay t’ home either.
Shouldn’t have named him after him.”
This
knack at physical disappearance raised conversations within the family both
about the origins of Sam’s behavior and/or the reinforcement of such
propensities. Was it nature or nurture? “How did he get like this?” they
wondered.
My
father: “Sam needs a good hiding.”
My
grandmother and mother, in unison: “Don’t you dare touch that child.”
Grandma
lived with us and was the resident authority on child behavior. A family
therapist might raise her eyebrows at this point, ready to pronounce: “Aha –
triangulated parent system!” But, we didn’t have family therapy back then and
Grandma would be very quick to assert that she knew what made Sam, Sam. She generalized that a lot of
people in the family were “gad-abouts,” besides the infamous Grandfather Sam.
My mother added that our little Sam seemed to have gotten all the “gad-about”
genes and some other instincts besides.
He
was insistent about certain preferences from an early age, like his desire to
receive dolls and cars as
gifts at Christmas, and his preoccupation with Shirley Temple from the moment
he set eyes on her in an old movie. He was not in love with Shirley, he wanted
to be Shirley and danced
around the house singing On the Good
Ship Lollipop. By then he was four years old with golden brown
ringlets all over his head and considered “cunnin” (adorably cute) especially
by my mother and grandmother. They encouraged him and fawned over his
theatrics. Otherwise he scowled or disappeared, and everyone agreed he was a good singer.
“I
am Miss Shirley Temple, and now
I will sing …” he announced as he shuffled out of my closet in my white
anklets, black patent leather shoes and blue satin dress and proceeded to his
“stage” in the living room. It might seem unusual to others that we all sat
lined up in chairs like an audience as he flounced in, tipping his head of
curls back and forth, prancing up and down, belting out Meet Me in St. Louis.
“Listen
to that,” smiled Grandma from ear to ear, clapping her hands, bouncing forward
in her chair, “he’s right on key – every note.”
There
were probably other signs that something about Sam was different but I had no
means of comparison. My brothers and I did not associate with other children
besides each other until we each started kindergarten in a three-room
elementary school across the field behind our house. We lived in the
attic of a nursing home, the family business, for our first years. We ate meals
with the patients or in the kitchen with the nursing home cook and spent our
days ready to play with anyone who might spend time with us, mainly old
people.
In
1954, Sam entered kindergarten and the day before school began, my mother cut
off all of his golden brown ringlets. They had grown into long banana curls by
then.
“I
don’t want the other kids to make fun of him,” she said as each curly lock was
tied with a bow, clipped and placed in a cigar box that she had decorated with
blue and silver flowers on a black background. He went off to school dressed in
brown pants, white shirt and herringbone jacket with his hair short and a scowl
on his face. I vaguely remember that he insisted on wearing his clip-on, red
plaid bow tie, too.
At
lunchtime, I left my second grade class to go to the kindergarten room to find
Sam. We walked home for lunch in those days. Miss Pearl Johnson was waiting for
me at the door to her classroom, holding Sam by the hand. I loved Miss Johnson.
She was a beginning student’s dream; kind, smiling, soft-spoken and generous.
She gave each child an Eskimo Twins coloring book and a box of crayons on the
first day of school. The book seemed enormous - the height and width of a small
child’s upper body. On the cover were two laughing twins, a boy and a girl,
with rosy cheeks like the Campbell Soup kids. Sam showed no signs of
being impressed.
“I
didn’t get a smile from Sammy today,” crooned Miss Johnson, “I hope I get one
tomorrow!”
“I
want my curls back!” he informed me as we set out from the schoolyard for the
five-minute walk home.
“I’ll
show them to you in the box. Mama painted that box just for you,” I said.
He was cute, I thought,
even as he scowled and stomped and kicked stones all the way home. This was
another version of our prophetic tableau – Sam announcing or proclaiming or
complaining about something and me trying to come up with an answer.
Miss
Johnson had her hands full that kindergarten year, keeping Sam in her classroom
and in his seat. The soft grey hair that framed her face seemed whiter by June
of 1955. She said that Sam was clever and cute as a button, the voice of an
angel, the cat’s meow, but there was a problem. She announced at the end of
that year that little Sam really should spend another year in kindergarten.
“He’s
not quite ready to advance, socially that is,” she said.
It
seemed that Sam was prone to outbursts among other children and couldn’t get
along with anyone when he didn’t want to, poor thing, according to Miss
Johnson. I could have told her all that and saved her the trouble of finding
out for herself.
“And
when he decides to take off – whew! He’s fast,” she said.
Our
mother, not prone to applying psychology except in desperate times, decided
that perhaps Sam felt displaced or jealous because another little brother had
been born one week before Sam had his hair cut and started school. Finally, he
was sent off to a new private school in the next town to repeat kindergarten
where the student population was different, but not necessarily more
harmonious. They all had problems even before Sam arrived. There was Hugo, taller than any elementary
school child on the planet; Jimmie, who needed to poke you before he said
hello; Marcia whose facial tic vibrated her short, blonde hair; and Mickey who
could not sit still. Sam looked pretty normal in the class picture.
I
attended third grade in the same school with Sam that year. I was not there
merely to succor him. I had my own problems. In our old school Mrs. Robinson
taught both second and third grade. Her grandson, Harold, with his button-down
collar shirt and his pants hitched up almost to his armpits, would be left in
charge of the class when she went out periodically for a few moments of
undisclosed activity. Harold looked innocent from a distance with his red
hair neatly combed, but he had a sinister side. He would sit behind her desk,
drumming his fingers on the wooden surface with a foreboding tum-ta-tum sound, and then slowly
open the top drawer from which he would withdraw a coil of black material in
the shape of a leather strap or belt and place it on top of the desk. “This is
my grandmother’s switch,” he said. “She’ll use it on you if you’re bad.”
He
had me convinced even if Mrs. Robinson never exposed the coil herself. I
volunteered to wash the blackboards after school and bang all the erasers
against the building in an effort to bring up my score of good behavior. But
the pressure to be good became so heavy that soon I would start out for school
and return home in ten minutes with a headache or stomach ache or whatever
physical ailment I could produce. My border crossing was a pile of rocks out of
sight behind our house on which I would sit, conjuring my symptoms. After a few
moments of concentration my shoulders slumped naturally and my nausea and
headache or earache felt almost real. My mother, the nurse, was seduced by
physical suffering and let me stay home.
After
a month of school days lolling on the couch, my mother produced a psychological
diagnosis for me, too. It was decided that I would avoid the third grade year
with Mrs. Robinson and spend a year along with Sam in the school with the
funny-looking kids. We liked Pine Point Private School but it was an expensive
treatment program in those days, and we were both declared cured after one year
away from public school.
“He’s
a good eater,” said Gram about Sam who grabbed everything in sight at the
dining table. His tastes quickly surpassed the usual bland New England cuisine
of meat, potatoes and over-cooked vegetables. As a baby, he sat in his
high chair, scanned the plates set before us, and exclaimed with pre-verbal
babble, lunging and pointing at what he wanted, rocking his chair to and fro to
the point of almost tipping over, trying to propel his small body in the
direction of his desire. My father always had interesting things on his plate.
“Don’t
give him any of those pickled pig’s feet, Bob! He’s just a baby,’ scolded my
mother, as my father sliced him some of his sour ham hock.
On
a family trip to Florida, I remember a particular breakfast at Rascal’s Pancake
House in Miami, where Sam, aged five or six, announced to our parents that he
would be having the double-dip hot fudge sundae for breakfast. Their initial
refusal to go along with this was followed by a major, but not unexpected,
tantrum on Sam’s part with scowling, shrieking and jumping up and down on his
chair. This display was followed by a tackle maneuver in the spirit of a
half-Nelson by our father, followed by our mother crying, “Stop hitting that
child!” followed by all of us watching Sam happily lunge into a double-dip hot
fudge sundae, ordered by our mother to “calm the child down.”
My
older brother and I sat stoically, trying to pretend that we weren’t related to
this Tasmanian devil who had brought all eyes in the restaurant in our
direction. We slumped down in the high-backed booth and looked at each other as
if to say, “How can he even like so
much ice cream at breakfast”? Ice cream for breakfast was not the point
of my parents’ objection; they were still in the dream that they could
influence Sam’s behavior, but it was already too late. Today it seems obvious
that Sam was reinforced by the fact that he usually prevailed in these battles
– he did get the sundae – but was it also his nature that activated our little
potentate?
After his curls were cut off, Sam fought with me, too. Our mother and
grandmother cast about for other explanations of his behavior and made
comparisons with Samson in the Bible and his problems after a haircut, but regardless of Sam’s defiant,
demanding personality and the battles over whose doll was whose, we grew up to
be close. Of course, he called the shots. I was the pacifier and peacemaker and
he decided what we would fight about. When he was happy, he had a disarming
charm. I longed for a Sam-o-meter so that I could prepare myself for the mood
in which he would emerge in the morning. When we weren’t fighting, or when he
would agree to desist, we had tea parties surrounded by all of our dolls.
His
bedroom looked like the Victoria and Albert Museum with everything organized,
arranged and displayed: an intriguing respite from my topsy-turvy room. He
collected dolls, arrowheads, matchbox cars, and wooden Dixie cup spoons. A
decoupage mural covered one entire wall of his room – a ten-foot panorama -
depicting George Washington in all phases of his career, on horseback and off,
along with profiles of Jefferson and Lincoln pasted among the branches in a
forest setting. His closet was arranged precisely with shoes on shoe holders
and shirts neatly folded. He managed his room and his collections like a
maniacal curator who feared contamination by the rest of us. Occasionally, I
was invited in on condition that I didn’t touch anything. My older brother
appeared dumbstruck by Sam and his peculiarities. He would shake his head in
amazement or blurt out a child-sized obscenity like: “You’re full of
toilet paper up to your ears and the rest is bologna!” Or, in a more sinister
moment of revenge, Bobby would send an eviction notice for the rabbit that Sam
kept in our communal rabbit hutch in the garage.
Sam’s
dolls were in much better shape than mine; his always had clothes on and neat
hairstyles. Mine were usually half-dressed with hair frizzed into Afros or
dreadlocks. When my mother bought a collector’s edition of the Shirley Temple
doll, reissued in 1958, she kept it in her closet for three years, hoping that
Sam would grow out of his doll fetish so she could give it to me without
inciting a war.
Sam
improved his social skills during his second year of kindergarten and had many
more friends in our neighborhood than I did, especially among the little girls
in town. He seemed to play better with girls than boys and, in our
rough-and-tumble neighborhood with the number of sling-shots, cherry bombs, and
jackknives in use, it was probably safer to stick with girls.
With
his adolescence came violent screaming outbursts and the devouring of huge
quantities of food. Excessive food consumption was not a problem for our
parents. Overeating was encouraged at home. My mother believed that fat kids
were healthier than the scrawny, and my father had starved during the
Depression. Legends tinged with pride abounded about Uncle Joel who could eat
nine eggs and a loaf of bread for breakfast and Cousin Timothy who made ice
cream in vats and floated a barge on the Mystic River to sell ice cream to
boaters in the 19th century.
But
Sam’s appetite seemed insatiable. He could easily consume a dozen donuts and be
ready for a meal. My father’s concern was not about the type of food and
how much was consumed; it was rather the appearance of gluttony in social
situations. He yearned for civility and decorum at the table, even if he had
his own problems with impulsive and indecorous behavior when he lost his
temper. And mealtimes were not spared Sam’s dissatisfactions. Meals
were often interrupted by arguments that included food sailing through the air
over the table at my brother and me, especially if our father was not at
home.
So,
what was Sam’s nature? What did he know, or want, from his earliest inklings?
Was his little soul already in a battle with something in that early photo? Did
that scowl foretell the petit Genghis Khan he evolved into in childhood and
adolescence? More than likely, he was deeply affected by the presence of our
youngest brother’s sick bed in the middle of the living room for two years –
perhaps more than I was. I at least had a self-assigned duty to entertain our
sick brother and busied myself watching my mother’s nursing care, the
diaper changing, the tube feedings, the cooking of broths and creation of
nutritious meat extracts, the giving of injections, Phenobarbital and Dilantin,
the sponge baths. I’m not sure what Sam was doing during all those years when
he was between ages five and eleven while Danny deteriorated from a seizure
disorder. Perhaps when my attention swerved to the new baby in the house
at the same time that Sam’s separation from his curls took place, he noticed
that he wasn’t the center of my universe any more. Sam was eleven when Danny
died and his wild trajectory continued.
At
age fourteen he announced his plan to become a professional tourist. With a
Brownie camera and carrying case, he took off on his bicycle for points of
interest around town. He would usually invite a girl his age to accompany him
and return home with rolls of film to be developed. This was the start of
annotated photo albums that he maintained for the rest of his life. The early
photos were carefully mounted on black construction paper and labeled with
date, location and comment, and kept neatly in a scrapbook.
“June
10, 1963. Janis Fox doing a cartwheel next to a brook in Old Mystic. Nice place
for a picnic.”
“July
1, 1963. Ruth’s cat, Blackwell. He brought a snake through her bedroom window
yesterday. Ha Ha!”
By
the time he succumbed to AIDS in 1989, he had traveled and photographed the
globe, everywhere except Southeast Asia. He cooperated fully with our parents
in their efforts to keep him out of the military with a CO status.
When I met my future husband, it was convenient that all of my dates were now
two and one-half hours away at West Point Military Academy because otherwise I
had to deal with Sam and his intense curiosity about my dating life.
“Why can’t I come with you?” he would plead as I left with a boy.
“Because I am going on a date,” I
replied; a response that seemed logical enough to me, but never to Sam.
It didn’t occur to me that perhaps Sam was fixated on me in my life as a
girl. I thought he was just my quirky brother and, looking back, he
was possibly more vulnerable and less protected in some situations, where I
would have been more cloistered because I was a girl. If Dickie Parasol, an
older boy in the neighborhood, tried to burn my hand with a cigarette lighter
when I was five or six, what might he have offered to do to Sam if he cornered
him? With all the chaos in our family life and Sam’s propensity for
disappearance and impulsive behavior, I’m not certain how or by whom he was
protected in his elementary years.
When
I married at age nineteen and moved to Germany for two years, Sam wrote to me
and announced that he was coming for a visit. I had mixed feelings. On the one
hand, I was extremely homesick and missed my family; on the other, he was the
only person who offered to visit. I wondered, “How badly can he behave?”
I rationalized that perhaps what Sam needed was to get away from home.
He’s older now, I thought. He’s graduated from high school.
Sam arranged the trip entirely on his own with a travel agent. He earned money
for the trip working as a nurse’s aide. He flew First Class on Lufthansa and
landed in Munich. When I found him at the airport, I was glad to see him and
shocked by his appearance. In eight months he had grown in height and girth and
wore a red and green plaid madras jacket that made his six-foot stature and 250
pounds stand out like a giant billboard as he smiled broadly at me in the
arrivals area. Sam had become a mammoth! I surmised that the donuts
and the Great Depression nutrition response program never stopped back home.
He was on his best behavior for the entire three weeks we spent together. Is
this amicable, accommodating and loving person my brother, I wondered? In
addition to sightseeing, I decided he needed to lose weight and we started the
Atkins diet together. He complied, with not a single dissent, and during those
three weeks he lost fifteen pounds. He confided, though, that when he got home,
he would have to deal with the fears and wrath of our mother who, he claimed,
liked him fat.
“She
thinks I look good when I’m heavier,” he said. “She’s worried that I might
contract a disease like TB, especially if I go to nursing school.”
“Okay,” I said. “Think of all the fun you’ll have gaining back the weight, if
you decide to, when you get home.”
Sam never regained the weight when he returned and continued to lose down to a
normal size, much to our mother’s dismay. He also never acquired normal eating
behavior. He swung from binges to deprivation. His favorite position in the
kitchen was to stand at the open refrigerator nibbling out of one platter while
picking from another plate on the counter. But, with excessive exercise and
intermittent extreme dieting, he maintained a normal weight for the rest of his
life.
After
his death, I found the detailed diary he kept on his trip to visit me in
Germany twenty years before and there was never a mention of the diet. The
pages glowed with descriptions of the places we went, the things he bought, the
fun he had with us, and the
wonderful German bakeries where he enjoyed dark bread, giant chocolate and
vanilla frosted cookies and fruit tarts. Somehow he had it all, even on
the Atkins diet.
When
I returned from Germany, I learned that he had entered nursing school in the
fall after his visit with me and had had a “bad experience.” The school he
chose was Rhode Island School of Nursing - the same program our mother attended
in the 1940s. The bad experience was never revealed to me and possibly to no
one although my mother probably knew and decided that no one else needed to
know. The official story was that he returned to our parents’ home from school
one day, despondent (about what was
never revealed), and attempted suicide in his bedroom with an overdose of mom’s
sleeping pills. My mother found him in his pajamas, lying on his back in
bed with the shades down and a suicide note pinned to his shirt. She called an
ambulance and got him to a hospital where the family doctor pumped his stomach
and discreetly altered the “cause of illness” in the medical record. My mother
thought the words, attempted
suicide, might not look good on his record. This creation of privacy
around his “illness” also shut down communication about it - except with mom,
the woman who had cut off his curls. She adored Sam but she was also preening
him to be her successor. He was the most likely candidate to follow in
her footsteps and run the nursing home business.
I
was in awe of his abilities when he did succeed to become a nurse. Perhaps
he had been watching, along
with me, the meticulous care our mother had taken of Danny in the sick bed at
home. Sam reveled in emergency situations and had an excellent reputation among
all the doctors and nurses with whom he worked. He never hesitated to assist in
medical emergencies wherever he was and reportedly revived two victims of heart
attack on two different airlines. His sense of humor and love of the wild and offbeat,
fit right in with the peculiarities that can occur in hospitals. He loved to
tell the story about an exotic male dancer with a ruptured spleen who was
brought to the ER straight from the dance floor in his costume. “When we cut
off his silver lamè pants to get him into surgery, he had a giant kielbasa
sausage taped to his upper thigh,” Sam laughed.
By
age thirty Sam was hitting his stride. He had twice been engaged to marry (two
different women); had trained and worked as a respiratory therapist; trained
and worked as an emergency room nurse; received a Bachelor of Nursing and a
Master’s Degree in Public Health; and was a certified Nursing Home
Administrator. He lived in the same small town as our parents and aspired to
buy up all the small nursing homes in the area and build an empire, following
our mother’s dream. I learned later, after he came out, that he had become
a world traveler, a sort of professional tourist, especially to places around
the globe that catered to a burgeoning population of wealthy, mostly young,
homosexuals.
It
was 1980 and AIDS had not been heard of in the general population. At the
same time, Sam’s path to self-discovery led to many new friends all over the
world. He had finally figured out how to get along with boys as well as girls.
When I was introduced to his friends they described him as great fun,
unpredictable, and insatiable. How about grumpy, I asked? Have you seen him
with that little scowl on his face? Oh yeah, they said, when he’s bad,
he’s bad.
I
learned from Sam how complicated it can be to re-present yourself to the world.
When I consider how difficult it is to present myself honestly on the page,
it’s nothing compared to embracing a sexual orientation that is morally
abhorrent to some people, oneself included. On a visit in early 1980, he ranted
about the “sins” he saw in other people and places, and spouted passages from
the Bible. I didn’t understand the total discourse of his diatribe until
he confided later in the same conversation that he thought he might be gay and that
being gay was a sin.
I
was surprised to think that Sam was bogged down in the hootenanny of religion.
Maybe I thought he was like me and had grown away from the shaming
aspects of our Protestant fundamentalist up bringing. Why was Sam
torturing himself with notions of an angry, critical, Old Testament God?
In response to his revelations, I said something like, “Well – we are what we
are. If you want to be with men more than women, it’s okay. I wouldn’t judge
you. What a terrible idea – to think of yourself as a sinner.”
“Well, maybe you don’t – but God does.”
“So – are you hurting someone else because you’re gay?”
“Mom and dad – they’ll never understand this. Mom says it’s the Devil who’s
winning when someone is homosexual.”
“So – is your mother – our mother – your biblical authority on this? Do you
think she has a direct pipeline to God? What in the world do you think she
knows about being gay, anyway?” I knew I was baiting him because I knew our
mother did have some kind
of hold over him, but I wanted to keep him talking. I couldn’t let him win this
one and go away thinking that he had convinced me how wretched and unlovable –
how sinful - he was.
What followed this fearful confiding of his confusion with me about his
sexuality were periodic lengthy silences interspersed with furtive phone calls
in which he revealed his full-blown entry into the international gay life and
trips to bath houses in New York, Providence and Provincetown. I learned his
itineraries and destinations eventually because I would periodically get the
frantic calls in the middle the night when he required a rescue operation that
only I could help him with, according to Sam. Twice he was in serious car
accidents but he didn’t want anyone except me to know where he was, whom he was
with, or where he was going.
He
escalated in his pursuit of multiple relationships in far-flung places. The
rest of the family assumed that Sam had just become a world traveler just as he
had always wanted to be. The tricky part was that he was also running the
family business, the nursing home, and conspiring with our mother about
expansion and building the empire she always wanted. “I’ll run the business,
we’ll add on, we’ll make lots of money,” he said. It was her dream and
she covered for him in the office when he left for weeks at a time.
“Poor Sam, he works so hard when he’s here – he’s needs a little vacation now
and then,” said mom, as Sam set off for Egypt, Prague, London or Zurich. The
annotated photo albums filled an entire bookcase. She never commented on the
fact that there were only other men in the pictures of Sam under the Eiffel
Tower, or lounging on a beach in Nice, or exploring a castle in Bavaria.
Just as Sam’s newfound life spun into a frantic pace, as he came and went,
pouring out his remorse and guilt in his conversations with me, a genuine
tragedy occurred. Our father, also known for mood swings and dangerous
behavior, fell, thirty-five feet from the roof of a new house he was building.
He had severe asthma and frequently used an inhalant. On that day, after lunch,
he climbed back up a ladder to the roof several times, carrying fifty-pound
pallets of asphalt shingles. He was working alone on a steep pitch without a
safety harness and probably used his inhaler and stood up too quickly, causing
a flash of hypotension - a momentary blackout from exertion or rapid standing
and crouching as he worked. He didn’t remember what happened, or his flight
through the air to the driveway below. My mother, who said her intuition sent
her back to check on him, found him thirty minutes later on his back on the
ground where he landed. He was alive and conscious, but his spine was crushed.
He was sixty-one, otherwise in excellent health, and henceforth paralyzed from
the chest down. He lived only one year after the accident.
My
father had seemed elusive before his injury. He was eloquent and well read and
often appeared in various pulpits in town as a lay minister, but I knew him to
shut down and be without words in emotional situations - unless he had created
the event. If a subject was difficult to speak about, he lapsed into silence,
his head dropping down towards his chest, his face disappearing and then he would disappear into the Bible,
behind the Encyclopedia Britannica, out the door to work or church. Perhaps he
had some of those genes passed down from the family “gad-abouts.” But now, he
could not physically go anywhere without assistance, and I made an important
discovery about myself. During one of many conversations with him after his
injury, I discovered my urge
to escape a subject, to disappear. One of those discovery moments occurred when
my father asked me if I knew what was wrong with Sam.
“Why is he always gone – why doesn’t he come and talk to me?” he asked.
I
knew that Sam had not told our parents about his sexual orientation. I wanted a
phone to ring or someone to yell, “Ruth, can you come here for a second?” But,
we were alone in the house and dad couldn’t shove off in his wheelchair. He was
reduced from the former lively, dapper, man who could change out of his work
clothes in a flash and transform himself with a fine, stylish suit, overcoat
and felt hat. Now he couldn’t even pee without needing someone to insert a
catheter. He had risen from poverty to become a successful entrepreneur, who
could build and fix anything, only to arrive in the prime of his life at total
physical dependence, after a three-second fall.
I
decided that he needed to know about Sam. What could be the use of his not
knowing? He could think that he was
unlovable.
“Well
– there’s something you have to know about Sam,” I said. “Sam loves you –
but – you see he’s discovered something about himself – he thinks he prefers to
have relationships with men – intimate relationships – physical relationships.
I know he wants to tell you but he doesn’t know how.” I was stretching a little
on this part. I wasn’t sure if Sam ever wanted our parents to know but, all
things considered, I had to make a decision to tell or not tell the truth.
Otherwise, where could my father go in his own justifiable self-pity? He had
made a lot of comparisons between himself and the biblical Job since the
accident.
There was a lengthy silence during which my father sat in his wheelchair with
his head down and his hands clasped together, his arms close to his body. He
looked up and said: “I’ve been trying to imagine being that way, with Wesley,
for example, and I just can’t find a way to see it, to feel that way – with
another man. I love Wes, but I couldn’t be that way with him.”
Wesley was my father’s closest friend.
Okay. Now I had to tell Sam that I had spilled the beans. I described to him
the scene with our father and Sam increased his visits to his bedside.
Sam said they never talked about homosexuality or relationships. I suggested
that I could also break the news to our mother as well, because she would find
out anyway, and he agreed.
She
sniffed at my words when I told her, as if I was revealing that Sam had
acquired bedbugs from sleeping in a seedy hotel. Her appraisal of his emergence
from the closet was that he was in a temporary crisis and he would get over it.
She also shared with me her notion that Sam could decide not to be gay. “He
always was excitable. He has to say no – to the Devil,” she said, “and he’s too
thin. He needs to stop his silly dieting and eat more.”
During
that year, 1980, Sam was an infrequent visitor - he had to encounter mom each
time - but in the days just before our father’s death, he offered him
extraordinary care. The final event was total respiratory failure and his last
three days a series of ghoulish efforts to keep him alive long enough to clear
his lungs. He was kept on a bed of ice in the ICU to slow his metabolic
functions and had a breathing tube down his throat into his lungs. He scribbled
on a communication board, “Stop killing me.” But my mother prevailed. She
wanted everything in hopes that he would miraculously “get better.”
Sam
attended him in the intensive care unit as his nurse. The two of us were alone
with him when he lost consciousness and the heart monitor showed a wavering
beat that diminished to nothing. I stood back in horror, my heart beating so
hard that I felt I could defibrillate him with my shock waves. Sam calmly
and gently removed the tubes from his mouth and chest, detached the electrodes,
washed and shaved him, and covered him with warm cotton blanket.
Sam’s
partner at that time, Dennis, a former Jesuit priest, spent many hours with us
in the hospital as my father was dying. One year later, in 1982, Dennis died of
a new, strange disease. They were no longer a couple at that point and Sam was
notified of his death by a mutual friend.
Sam
called me: “Dennis died – some kind of pneumonia. Strange – he was a healthy
guy.”
In 1984, even though he continued to circle the globe to meet male friends, Sam
announced to me that he thought he was not completely gay and had decided to
get married – to a woman. I asked his fiancé what she knew about Sam’s life.
She responded with an easy smile:
“Oh, do you mean about his past? He told me everything. He thought he was gay,
but he’s over that now. Everything’s okay. I can tell you that for sure,” and
she winked at me.
The nature or nurture question loomed.
“What do you believe about homosexuality?” I asked her.
“I think it’s a choice people make,” she said. “Sam knows he prefers women. I
can tell you – Sam is a real man!”
Lisa was well educated, over thirty and worked in health care, but it was early
in the gay sexual revolution. How could she know? I was a little more informed
than most, thanks to Sam. How many heterosexual people knew about the gay
bathhouse scene in which, he said to me, it was possible to have thirty-plus
sexual encounters in one night? I’m not sure how he kept track.
She
didn’t have the experience to question Sam’s ambiguous behavior, nor had she
been with him long enough to know that he usually got what he wanted – or what
he thought he wanted. I believe that Sam thought he could make it work.
It could be easy to have a secret life because it had to be a secret. Providence, Provincetown, Boston,
New York were all easy driving distances if he needed to get away. He
would look normal in 1984 Connecticut, build a dream house on the water and buy
up all the small nursing homes in the area.
They were married in a grand church wedding with four hundred guests at the
First Congregational Church in Lisa’s hometown, another quiet WASPy community
nearby. Every doctor, lawyer and Native American Indian chief in her town and
Sam’s was invited.
The
happy couple honeymooned in Europe for three weeks, and one month later Sam was
on a plane to San Francisco - without Lisa. She hysterically said she thought
he was having a nervous breakdown.
“He told me he had to get away and think,” she cried. “But he’ll come around.”
“Maybe
it’s not so easy to stop being gay,” I said “Isn’t it better to know now than
later?”
She
told me that they had started out with a passionate sex life and shortly after
the honeymoon Sam couldn’t perform, sexually, anymore.
“I told him we could work it out,” she said. “We’ll go to counseling – and then
he just left.”
When Sam returned two weeks later, he had switched back. “I had to get away.
I’m okay – we’re okay,” were his words reported by Lisa.
“Don’t listen to him,” I said. “Find a therapist.”
The relationship took on a new dimension. Now they fought physically. They
lived in an apartment in my mother’s house while they built their dream house.
My mother called me: “There is crashing and banging up there – can you come and
see what’s going on?”
I was an hour away and I told my mother to call the police if she thought there
was physical violence, but she refused. “We don’t want the police involved –
Sam and Lisa are professionals – just come down here and talk to them – they’ll
listen to you!”
I
acquiesced and arrived in time to see Sam careen out of the driveway in his car
and disappear down the road. Within two months, the marriage was
annulled.
“You just have to remember that it’s not about you,” I said to Lisa. “You landed in difficult, unknown
territory when you met Sam.”
Within one year after the marriage ended in 1985, Sam developed hepatitis, and
small lesions, like bruises, emerged on his shoulder and arm. He showed them to
me and said they were weird, that he had never seen anything like them in the
hospital. At lunch one day in a restaurant with our mother he announced that he
thought he had Leukemia. His energy level seemed unaffected. He still
traveled constantly and moved from one gay relationship to another. Our mother
continued to say; he’ll get over it
if he just puts his mind to it. He jogged and dieted. He bought and
sold houses furiously and redecorated each new house in a different style. In
1987 he told me he was HIV-positive but there was hope: a new medicine to build
immunity.
“The
doctor says I might have had this for years, but I’ve got a strong constitution
– I just have to rebuild my T-cells,” he said.
“What
do you think about telling Lisa?” I asked. “Especially if you think this is
what Dennis might have had.”
“I
haven’t been in touch with her,” he said, “I don’t think I want to talk to
her.”
I
called Lisa and told her Sam’s news. She tested negative for the virus.
In
1988, Sam was diagnosed with AIDS-related Kaposi’s sarcoma, a cancer of the
capillary bed. He entered a research protocol at Yale Medical Center and
submitted to every new experimental drug available. On our drives back and
forth to his treatment sessions, we reviewed our childhoods and tallied up our
similar and dissimilar perspectives. His thoughts frequently went back to
religion and his relentless belief that he was a sinner. During the final weeks
of his illness he fought verbally with our mother and resisted her attention
and nursing care. Perhaps the argument about good and evil was the heart of the
matter for Sam; why he could not release himself from the idea that he was a
sinner and he was getting what he deserved. He had adopted her view about sin
and homosexuality and craved her approval, at the same time he spoke about her
with bitterness.
“She
thinks she knows everything. I think she hates me,” he said.
She
said to me: “He’s still my little Sam – he just needs to do what I say and
he’ll get better.”
He
was a tangled knot of anger, fear and guilt. One midnight in April 1989, he
called me to say that he had decided to commit suicide but he wanted to talk
about it first. We sat at the bottom of the staircase in his house. As he spoke
and cried, I sat below him and looked up into his bruised face. He said
he knew things would only get worse. He would be a burden. I said I would do
what I could to help him do things his way. He thought carbon monoxide was the
easiest solution.
“Just
a hose from the tailpipe into a window of the car - it’ll be like going on a
trip,” he said. We kept talking and he talked himself out of it.
I
didn’t have enough biblical knowledge to contradict or argue with Sam in his
use of the Bible against himself. He needs a specialist, I thought. I contacted
a friend who was rector of an Episcopal church in town. He seemed open and
non-judgmental, and when I described Sam, he was up for the challenge.
“I’ve
never worked with someone with AIDS before,” he said, but even Father Taylor’s
informed and generous conversations with Sam about scriptures, God, and
forgiveness, and the divine right of people to make choices, did not dissuade
Sam from his belief that he was damned.
I
took a leave of absence from my job at Boston Children’s Hospital where I
worked two days a week in a clinic with children with complex nutrition
problems and eating disorders. I couldn’t concentrate. Sam occupied my heart
and brain and I worried about how to explain his illness to my son, age
ten. I could barely explain it to myself. Sam decided a trip might help.
He and his current partner went on a gay cruise that sailed out of San
Francisco and my son and I met him when he disembarked and we drove down the
California coast together. We made it to Disneyland before Sam needed to be
home in his bed.
Back
home, we talked and watched movies, especially comedies: The Marx Brothers,
Abbott and Costello, The Three Stooges, I Love Lucy. We discussed Norman
Cousins and his “laugh your way back to health” philosophy. I approached
Sam’s obsession with sin and his fixation on damnation from every angle but
failed to convince him that anyone loved him, except perhaps me. Even that was up for question. “But, don’t worry,
I love you Ruth, even if I can’t be loved,” he offered.
“What
makes you think that I don’t love you? Why would I put up with all your
craziness all these years? Look what we’ve been through together,” I said.
“Yeah
– I know – you probably do, but I can’t explain. I’ve made a big mess but I
shouldn’t have to die – but I am – now I know something – I know why I have to
die.”
He
was determined to have the last word.
Now,
he was covered in dark lesions and suffered from thrush, a painful fungal
infection of the mouth and GI tract, but he didn’t complain about physical
discomfort. He stopped speaking to our mother and refused to see her. She came
anyway. He turned his face from her when she visited.
“He’ll
get better,” she said, “if he
wants to. He’s got to eat something.”
Three days before his death we sat chatting together as we had for weeks in his
living room. A year earlier he had bought his last house, directly across the
street from mine in downtown Mystic. We were kids again with our bedrooms
almost next to each other. We could have run a string across the street
attached to two tin cans.
He
was thin, his skin yellowed and bruised with inky lesions. His hair was cut
short with just an echo of brown curls close to his scalp. He wore loose blue
cotton hospital scrubs and sat with his knees spread apart in a recliner,
gently rocking. We were in one of our quiet meandering conversations going from
subject to subject, “remember this …, remember that … remember Gramma and her
harmonica and making us practice Camel
Train over and over on the piano, and slathering the cucumbers with
mayonnaise?”
Only
days before, he had ceased to bring up the subject of sin. He spoke frequently
about my son. He speculated about what he would grow up to be and do. “Don’t
encourage him in the nursing home business – unless he wants to. Let him be
what he wants to be,” he said.
It
was early June and Sam would not go outside. He said the sun was too bright and
the beauty of burgeoning summer too exquisite. When his attorney stopped by one
afternoon to check some aspect of his estate planning, Sam snarled after he
left: “I hate that guy.”
He
had to stop periodically to swish a yellow lotion in his mouth to relieve the
pain of thrush. Finally, in the middle of a sentence, the flow of words
stopped. He looked over at me with a new expression. There was a question in
his face - no signs of a scowl.
“I’m
trying to – to dial,” he said opening his brown eyes wide. His head dropped
back against the headrest of his chair. He looked in my direction but seemed to
focus on something beyond me at an indeterminate distance.
“Who
do you want to call?” I wanted to follow him, to stay with him. I tried
to make eye contact, but couldn’t.
“I’m
trying to dial – 1954 – but I can’t – I can’t - get through,” he closed his
eyes, and slipped into a hepatic coma.
Sam
died two days later at 12:00 noon on June 23, 1989. The night before, when his
doctor predicted that it would be a matter of hours, I called my mother with
the news and she disagreed. She said she was going to come over and give Sam a
“treatment.” Sam was unconscious and I thought, Sam can’t throw her out and she needs to do something. She needs to be
a nurse; a mother and a nurse.
She
arrived with four bottles of Dickinson’s Witch Hazel, a clear astringent
topical lotion made from a local herb, one of her favorite cure-alls. The rest
of us, Sam’s partner, my brother, my son and I, left them alone together. I
called Dr. West and suggested that he speak with her directly about the
imminence of Sam’s death. Now I was worried about her, who had seen death so
many times. She refused to recognize it was coming for Sam.
“Some
Witch Hazel compresses will make him feel a lot better,” she said.
She
liked Sam’s doctor, Edmund West. She told anyone she met that she knew the
grandson of H.G. Wells, which he was. In spite of the way she criticized
doctors, as most nurses do, an element of hero worship always prevailed, but
even Ed West, doctor and celebrity, didn’t convince my mother that
evening. She figured it out herself after the Witch Hazel treatment. She
went home exhausted but with a grain of triumph because Sam had come out of his
coma for a moment.
“I
asked him – hey – where’s the old Sam?” she said. “And he opened his eyes and
said – he got up and left.”
Sam
was blessed with a devoted partner in the last two years of his life. I didn’t
intend, by not bringing him into the picture earlier, to diminish the role
Johnny played in caring for Sam through thick and thin, sickness and health,
and Sam’s gadding about almost to the bitter end. There were so many others
before and during Johnny. He told me that he had always wanted to be the wife
in a relationship and Sam was the perfect demanding, irascible but lovable
husband.
I’d
heard some of Sam’s wishes along the way, in case things don’t work out, as he said in his less optimistic
moments, and I knew he wanted to be laid out in an open casket with a
traditional Protestant New England wake. He wanted to be buried rather than
cremated. He and our mother agreed on that point. Years before, after our
father’s death, Sam and I quietly buried the family cat, my father’s favorite,
next to dad’s headstone one night even though pet burials are not allowed at
Elm Grove. After that, Sam would joke – plant me next to Tommy Tuna.
During
the wake, Johnny and I stood side by side in our family group next to the open
casket as family and friends passed by. Sam was resplendent in his mauve and
gray suit and purple tie. The mortician was a high school classmate of Sam’s
and had performed a miracle with make-up and hair styling. He looked okay, no lesions or yellow skin. He
looked almost – healthy.
The
conversations with Sam were over but I still felt the cord, the string with the
two cans, between us. At a quiet moment between the hugs of mourners
passing by, Johnny turned to me with a smile and said in his soft fluty
Floridian accent: “You know, this is the first party that Sam and I have ever
been to together when he wasn’t doing all the talking.”
The
next day Sam was treated to all the sacraments of the Episcopal Church in the
ritual service for the burial of the dead – in the church of our mother’s
childhood. His closed casket was carried inside up to the front next to
the altar and he was brought, with words and readings and ceremony, into the
community of Everyman, the
concept that we depart this earth as equals. At last I got to impose my
opinion on my little brother and he couldn’t argue with me.
He
was buried next to our father and Tommy Tuna in Elm Grove Cemetery less than
one mile from where we grew up in Old Mystic.
I miss him - and his scowl.
*****
THE STORY BEHIND THE
ESSAY
My
brother Sam died of AIDS-related Kaposi sarcoma at age thirty-nine during the
height of the HIV-AIDS crisis, in 1989. It was a terrible time because we all
knew, including Sam, that the diagnosis was a death sentence. A year before his
death, he bought a house across the street from my house, and, during that last
year, we spent hours each day talking about our childhood. One day in the midst
of a story he suddenly said, “I’ve been dialing 1954, but I can’t get
through.” Seconds later he became comatose and died three days later. I wrote
his words in my journal during those days, but it took another twenty years to
write about growing up with my little brother - and losing him. Writing this
essay allowed me to embrace him, once again.
*****
ABOUT RUTH W. CROCKER
Ruth
W. Crocker’s essays have appeared in The
Gettysburg Review, Grace Magazine, O-Dark-Thirty, T.A.P.S. Magazine, Bennington
Review, PersimmonTree, The Saturday Evening Post and others. Writing
awards include a notable essay in Best American Essays and a Pushcart Prize
nomination. She is also the author of People
of Yellowstone, and Those Who
Remain: Remembrance and Reunion After War, a memoir of the Vietnam
War. She lives and writes in Mystic, Connecticut. Visit her at: www.ruthwcrocker.com and www.PeopleOfYellowstone.com
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